Joe Cain Day, Mardi Gras 2012
Remember when I posted about Drew’s disease and the big lifestyle changes we were making because of it? I’m here to give you an update. Since that post, we’ve learned quite a bit about homocystinuria. We went to see a geneticist who told us that there are many different forms of it, but that the most common form, which he thinks Drew has, responds well to vitamin therapy. That means that going completely vegan wouldn’t really be necessary.
While we love being quazi-vegetarians (I know there’s a real word for it but I always forget it), being vegan is difficult, to say the least. We’ve done well in some areas: switched to almond milk, coconut milk creamer and soy yogurt. But those fake cheeses? Not so much. Absolutely disgusting. We also like to eat meat every now and then – usually once or twice a week. I’m pretty sure we would stay on this same path if he does need only vitamin therapy, because there are so many other reasons to not trust dairy made in the US. I’ve even switched to European cheeses to escape from the awful growth hormones in American dairy, but that has absolutely nothing to do with Drew’s condition.
The next step is a genetic analysis to determine exactly which type of homocytinuria Drew has – that’s being done right now. From there, we will see a metabolic specialist that can help us with vitamin and diet therapy (which hopefully means another great trip to New Orleans!).
Drew’s eye is doing well for now. He will need another surgery in the coming months, but we’ll take it one step at a time.
As for the baby, we aren’t doing any kind of prenatal testing to determine if he/she has it. The geneticist and my girly doctor (I’m sorry, but I can’t say or type that other word) are both pretty confident that I’m not a carrier, since nobody on either side of my family has any symptoms of homocystinuria. The only way for our kid to have this is if I’m a carrier. Otherwise, they will all be carriers and need to be educated. Homocystinuria is also one of the 20+ diseases/problems they test for at birth, so I’m certain that we will catch it in time if Baby Davis isn’t so lucky.
So there you have it! I’m really beginning to enjoy baking vegan goodies, whether it is necessary or not. It just feels good for some reason.
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